1. Right to education (RTE)
7. Working with parent advocacy groups & support groups
- Creation of an appellate cell in the AOCN where any case who is facing issues in schooling can be referred by any Pediatrician/Pediatric Neurologist/ Parent.
- Draft a letter with a standard format on the AOCN letterhead, for sending to the concerned school when required.
- In case of non resolution, the District Education officer etc need to be identified by the Advocacy group of AOCN who can be requested to take up the case.
- Highlight through media and create public awareness about the right to education act.
- The information on the RTE to be put up on the AOCN website, overand above the link to the SOLACE document.
- Epilepsy awareness to be created among
School teachers/ staff and parents in parent teacher meetings
School children from classes 8 – 11
- School children from classes 8 – 11
- Training modules for both these categories in the form of a PPT will be created and training will be carried out by young Pediatricians and Pediatric Neurologists on a volunteer basis.
- To work towards inclusion of epilepsy as a disability in the disabilities act of 2016.
- Current insurance policies have epilepsy as a permanent disability, making it difficult for children with epilepsy to take medical insurance policies.
- The current status of insurance policies to reviewed and a roadmap prepared , for special Mediclaim policies for children with epilepsy.
- The committee will work on making available the following drugs : CBD/Vigabatrin/Stiripentol/Fenfluramine/ Rufinamide
7. Working with parent advocacy groups & support groups
- State wise trial with Dream India Network and with trial in Karnataka as the initial program.
8. Dissemination of the AOCN SOLACE document which is available from the AOCN website.